Caregiver Stories

Welcome! We created this page to help caregivers "meet" other families with aphasia who may be going through similar situations. So many caregivers feel overwhelmed, guilty, exhausted, confused, or uneducated but have no one to turn to. Most caregivers find that their friends don't understand what a superhero the caregiver is expected to be at all times.

We hope that you will find a caregiver story that helps you.

Debra misses having nuanced conversation

Peg learned a lot from the Aphasia Center's expertise

Aphasia Caregiver: You have to be your own advocate

Aphasia Caregivers in Their Own Words

After Aphasia: Shari has had to take over everything

Loss of communication in the family

Former Town Mayor and Stroke Volunteer Discharged from Speech Therapy

Post Aphasia Therapy: Patricia "Now we can care more for each other!"

Tammy: A Caregiver's Story of Severe Broca's Aphasia and Apraxia

Ann: A Caregiver Story of very severe Broca's Aphasia and Apraxia

Global aphasia was like a bomb going off in their lives

Kaye's Story: Primary Progressive Aphasia

Melissa: Broca's Aphasia

Sonny recommends patience and "trying everything"

Brian's progress motivated him to keep working on his aphasia

Ruth's caregiver story

Doctor's dismissed her aphasia and "phantom accent" as conversion disorder!

Bilingual Anomic Aphasia. Ana caring for her newly married sister, Carolina.

Cody's Brain Injury and Aphasia

Jen's father had to adjust to a new "normal"

Tim: Severe Dysarthria and Agraphia

Sarah Scott's Story: A Young Person with Aphasia

Stephanie and Brent: Broca's Aphasia with Dysarthria

Tom's global aphasia recovery has been challenging for Carol

Lisa and Jane: Conduction Aphasia

Bob and Nancy: Severe Broca's Aphasia

"The effects of the stroke have been horrendous"

The frustration of aphasia: "Everything just kind of caved in on us"

Rose's frustration with taking over everything

Aphasia has been a life-changing learning experience

Changes in Family Dynamic due to Aphasia

Cecile dropped everything when her daughter received a brain injury and aphasia

Regina's family has learned to adapt to John's aphasia

A Caregiver's Take on Watching Aphasia Progress

Nairda learned how to help Aldo get more therapy

Ken: Challenges in Anomic Aphasia

Colleen: Transcortical Sensory Aphasia from Traumatic Brain Injury

Colleen has to be strong to be her husband's voice now

Shirley and Troy: Severe Wernicke's Aphasia

Roseanne: Broca's Aphasia from a Traumatic Brain Injury

Terry: A Family with Wernicke's Aphasia